Happy couple

Happy couple

Sunday, March 13, 2011

Wishing for a happy ending soon...

So things have been very up and down lately for miss Abby Jean. She is back in the hospital again she has been there for a week and a half. Her reason for being readmitted is she went to a clinic appointment and she was dehydrated and her fluid pockets in her stomach were bigger. She had also been spiking fevers. So the plan was to admit her for 48 hours and reposition her drains and do IV antibiotics. Well just like this whole last 5 months things didn't go according to plan. Abby was having fevers because she has CMV a virus they thought she had a month ago which they decided she didn't have. Well now she has it for sure. So we are a little frustrated because the lab tests she was doing a few times each week were supposed to be testing for CMV and they weren't. So she got more sick than she should have.
And since they repositioned her drains she has been in a lot of pain. She has been needing to take more pain meds so her blood pressure has been dropping a bit. So the doctors decided to give her a lot of fluids to increase her blood pressure. But like the other dozen times they have tried that she 3rd spaces all of the fluids which means it doesn't stay in her vessels it leaches out into her tissues and causes major edema. So again she has 30+ lbs of water on board again and so it makes it very hard for her to move.
Now on top of all of that she is having issues with her skin, she is peeling very badly. We have no idea why the doctors think it is a reaction to meds. But no one really knows why, but whatever it is she is in a lot of pain. Her skin just burns it is so sad. I was with her yesterday and it broke my heart. She just hurts everywhere and she is so frustrated. She is also having a hard time keeping food down and eating at all. Her pancreas issue is the reason for that. So we are all ready for her to feel like herself again. My dad made an appointment for Mayo Clinic in Arizona for some pancreas specialists. We are hoping for her to get a little better to make the trip her appointment is for March 28th.
So tonight I pray that Abby will feel better that she will eat and stop throwing up. I also pray for her to not be in pain anymore. So she can get stronger and get healthy again. We are all heartbroken for Abby right now. She has kept her chin up through all of this and her strength continues to amaze me!
For all of you friends and family she could really use visitors. Time moves so slowly during the days. And her and my mom are just there waiting for time to pass. So if you have a moment to pop in that would be great she is in room 5204 on the fifth floor.

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