Abby had a very bad day yesterday (Wednesday) she literally cried all day. I don't know how my parents did it, being with her all day and listening to her be in pain. She was very confused and seemed like she was stuck in a dream world. When she would talk it didn't really have to do with anything that was really happening.
Thursday wasn't as bad as Monday my parents were able to get a lot more answers from doctors and were able to speak to more doctors that can help Abby.
They thought that Abby had an infection but nothing cultured also she is breathing better. The reason for that is they removed the fluid from around her lungs so she is on room air now. Abby has had issues with her abdominal cavity and has had drains in to drain the pancreatic enzymes that leaked. She had a pocket that has been causing a lot of problems and that hasn't been draining very well. My parents have been asking for weeks for them to try to wash her out a little bit to get it all out. The Doctors continued to tell them that it couldn't be done. Well as you probably know by now we don't give up. So one of the doctors that put Abby's stint in and also saved her life by fixing the bleed told my dad he would fix her. So he went in and figured out that it wasn't fluid it was dead tissue, a gelatinous like substance so to think to come out of a drain. So he got as much out as he could then was able to put some enzymes in that can possibly break up the substance so they can get it out. So that is definitely some progress that dang thing has caused her so much pain.
The doctors also decided to do a spinal tap to see if there is sign of fungal infection or another infection. When they tapped her there was a lot of pressure behind it so they started thinking maybe she has fluid accumulating around her brain. They did a scan and it didn't show anything on the preliminary report. The neurologist will look at it tomorrow but for now it doesn't look like there is anything wrong with her brain. So that is good news.
Abby is still very swollen but she is making more urine today so that will help. She slept more today as well she didn't sleep at all the last few days just was out of it. She also told the nurses she had to sit in a chair. She kept demanding it so they put her in a chair for a while. That was a good sign for my parents, it is a sign that she still wants to get better. Because she was right she is supposed to be moving and sitting up.
She is still really out of it but she is having more calm moments so that is good. My parents also had a consult with pain management doctors who are starting her on some new things to help the pain. We are also looking into some other meds that have had some success for cancer patients on the drug neupogen. Which is the drug that is causing Abby all of her pain. So thanks to an old friend who answered a question for me about Neupogen. My parents were able to find more info about it and were able to talk to the doctors about it. It just shows you how prayers can be answered. I was praying for a way to help Abby then all of a sudden I got this urge to Email this friend who is an oncology nurse in CA. She told my some new info about a way to help the pain. So hopefully the Doctors will start it tomorrow, they are open to it so that is good.
Our hope for now is that Abby will continue to improve and get better just as fast as she got sick! Thanks for the continued love, support and prayers! Until Abby is more with it we are limiting visitors because she is easily scared with people in the room. So we will let everybody know when will be a good time to visit.
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