Today has been an exhausting day for Abby. She had Dialysis today, an EEG, a Neuro exam and is having to take a few antibiotics that are hard on her. She was pretty alert for her Neuro exam she followed the commands for the Neurologist. Abby has been pretty picky about who she will be responsive for. She usually won't follow the nurses commands, but she has been better for the OT and the Neurologist. She is a little more alert for her siblings versus her parents but we think that is because she expects our parents to be there. She is more surprised when we are there and she tries to be awake for us. We have really seen Abby's personality lately which makes us happy. We would love her personality to come out more.
The doctors are still going back and forth about the vent. The surgeons think she can come off of it but the Intensivest (ICU Dr) thinks she needs to stay on for a few more days. They just want to make sure she doesn't have an infection. That is why she is on the antibiotics more of a precaution. She did have a culture come back positive but it is for a bacteria that we all have on our skin. But because she is immune suppressed they are treating it before it can turn into anything. They still need her to tolerate feedings and for her Kidney to work.
Another concern for us is Abby's anxiety we just don't want her to give up or shut down. We are afraid that because every time she wakes up she is on the vent and tied down that she is going to not want to deal with it. Abby is a fighter so I know she will continue the fight. But I just want her to not be frustrated with how long it is taking.
So Abby still has a way to go on this long road to recovery. But she has made progress and we are happy about that. The biggest triumph of the day was her reacting more and showing more of her personality. She is worn out and a little anxious tonight but that is to be expected after the day she has had. My prayer tonight is that Abby will have a good day tomorrow. Because for now we have to take this one day at a time. Good night Abby we all love you and I know if you were up and alert you would tell everyone good night and that you love them.
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